Even with the addition of physical therapy twice a week, Jason's falls continue and have actually increased in frequency. One morning he fell in the bathroom, and ended up wedged between the toilet and the wall. He hit his head on the toilet, and put a hole in the wall with his elbow. Although we encourage him to use his walker during the day, in the middle of the night he often forgets. It's disheartening to wake up and discover new bruises that occurred while I was deep in dreamland.
We are currently making adjustments to ensure that Jason is no longer left home alone. With school starting this week, I was concerned about being able to continue working outside of the home. I could envision our already precarious budget crumbling. Thankfully, with the help of a friend willing to stay with Jason, as well as the flexibility and understanding of others, we are working out a solution.
We will be going to St. Luke's for a day of appointments on September 17th to start the transplant process. We are scheduled to meet with the transplant coordinator, do lab work, and speak with a social worker. During the next series of appointments, we will see physicians.
We continue to monitor Jason's kidneys through monthly bloodwork. It has been difficult to not dwell on the future and what changes it will bring. If only I could learn to heed my wise sister's advice and focus on each day as it comes. Whenever I allow statistics and possible complications to cloud my mind with worry, I remind myself that I am placing limits on what God is able to accomplish in our lives.
When I was in college, two of my nicknames were Bubbles and Spagiddy. Sometimes I wonder what happened to that carefree silly girl. I realize that adulthood is often fraught with serious responsibilities and issues, but often long for that lighthearted spirit to return.
"I wait for the Lord, my whole being waits,
and in His word, I put my hope." (Psalm 130:5)
