A few months have passed since we received the disappointing decision from St. Luke's regarding transplant. The evaluation process took an emotional toll, and made us hesitant to further explore this option. We tried to put the experience behind us, and reluctantly resigned ourselves to the prospect of dialysis.
For the past few days, however, my thoughts have continually returned to the idea of a second opinion. I finally brought it up with Jason, and asked how he felt about trying again. His response was simply, "Sure, what would we need to do?" After talking with Jason's primary physician and kidney doctor, we have decided to proceed. Jason's primary physician told me that he would need to hear a no at least twice. He can't say with absolute certainty that Jason will be able to tolerate the surgery and recovery, but feels we are sealing his fate if we don't try. Some of the misgivings St. Luke's presented are no longer an issue since stopping the Dilantin. Jason's risk of falling has significantly decreased, while his cognitive abilities have greatly improved. Jason will be referred to KU on Monday to begin the process. It has been extremely difficult trying to weigh the benefits and risks, knowing neither decision is ideal.
"I am the Lord, the God of all mankind, is anything too hard for me?" (Jeremiah 32:27)
