Tuesday, April 30, 2013

Routine

We have made it through 98 dialysis treatments at home.  While not without incident, the overall experience has been positive so far.  I had been skeptical when a friend assured me that it would become routine, but it truly has.  It's pretty amazing to watch Jason doing a treatment while lounging on the couch watching the NFL Draft.  He is taking it all in stride, and seems quite content as always.
We will go to the dialysis center for a PET (peritoneal equilibrium test) on May 10th to measure how quickly toxins are absorbed across his peritoneum membrane.  These results will help determine the optimal dialysis prescription for Jason.  We are scheduled to train May 28th-29th on how to use the cycler.  This machine will do exchanges overnight while Jason sleeps.  At that point, we will stop doing the four manual daily treatments.
Jason was scheduled for a heart echo and chemical stress test last week as part of transplant testing.  His transplant coordinator called the day before, and cancelled those tests.  The cardiologist felt that Jason should meet with the KU kidney team before proceeding with the heart tests.  This appointment will be May 14th.  We remain hopeful that this process will continue to move forward.


1 comment:

  1. one step at a time. Sweet Jesus! I know He is with you!!

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